If you've been touched by pediatric cancer...

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Posted 12/27/2012 by mirabelleswalker in NSBR Board

My president has 6-pack abs.

PeaNut 175,521
November 2004
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Loc: Here today, gone to Morocco.

Posted: 12/27/2012 11:39:46 PM
The mom of a patient I worked with recently suggested that I watch a one-hour documentary on YouTube called "The Truth 365."

I watched it today. It is about the scarcity of funding for pediatric cancers.

The filmmakers created it with the hope of gaining momentum as the Kony video did last year. At the 39" point they ask the viewer to do several things--share the video with friends, to see if their congressional representative is supporting pediatric cancer legislation and write letters if appropriate, and to sign petitions requesting more support.

I want to do my part in each of the areas so I am sharing it here.

The Truth 365


PeaNut 49,444
September 2002
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Loc: Tn

Posted: 12/28/2012 12:46:59 AM
Childhood cancer is horrible, it's bad enough for adults, but I can't stand that what it does to children.

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pearl-clutching nitpicker

PeaNut 201,774
April 2005
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Loc: gone to chemo with BethAnne

Posted: 12/28/2012 1:22:37 AM
My DD's best childhood friend lost her 8-month-old baby to a fast-moving brain cancer last year.

I will do what I can to help spread the word.

northern california

"The whole problem with the world is that fools and fanatics are always so certain of themselves, but wiser people so full of doubts."
--Bertrand Russell

My president has 6-pack abs.

PeaNut 175,521
November 2004
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Loc: Here today, gone to Morocco.

Posted: 12/28/2012 1:26:27 AM
Oh, Lucy, that's so sad. I hate this disease so much, but losing children to it is the worst insult. We just lost a patient who was diagnosed at 10 months and battled for 3 years. It's been a horrible blow to our team.


PeaNut 257,257
April 2006
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Posted: 12/28/2012 1:27:34 AM
I've sent it to all my friends and posted it on my FB. I just now realized I should put it on my Dd's Caring Bridge.

Thank you for sharing here too.


My president has 6-pack abs.

PeaNut 175,521
November 2004
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Loc: Here today, gone to Morocco.

Posted: 12/28/2012 1:32:20 AM
Thanks, Bran! I don't have a personal connection to this film but I do think it's important to get some of the information out to raise awareness about pediatric cancers. As I'm sure you've learned through your own experience with your daughter, there haven't been any new drugs developed in decades and resources for research are really lacking.


PeaNut 223,222
September 2005
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Loc: Kansas

Posted: 12/28/2012 11:41:56 AM
I will share thanks! There are cousins here in the area the 2 yr old was dx with a certain type if cancer can't remember which he's doing great.

The 14 yr old was dx'd with a rare form of ovarian cancer in Sept. and passed away on 12/12/12 @ 2:12 am. One of her family members did a fund raiser at the school she works and they made $1212.12. I'm going to share this link with her mom.

Kirsten mom to~
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Expecting my first grandbaby May 2013!
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PeaNut 187,115
January 2005
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Loc: CenLA

Posted: 12/28/2012 11:46:49 AM
Thanks for sharing and spreading awareness.



On August 5th, 2010, my 11 yr old son was diagnosed with Mucoepidermoid Carcinoma of the Parotid Gland (a salivary gland cancer). He had his 2nd surgery on October 15th at MD Anderson in Houston where they removed the rest of the superficial lobe of the right parotid gland and 19 lymph nodes...all of which were negative. Currently he is cancer free with follow-up scans every 3 months.

Feb 2011--scans/labs clear!!
May 2011--scans/labs clear!!
August 2011--scans/labs clear!!
Nov 2011--scans/labs clear!! OFFICIALLY 1 YR CANCER FREE
March 2012--scans/labs clear!!
July 2012--scans/labs clear!!
Dec 2012--scans/labs clear!! OFFICIALLY 2 YRS CANCER FREE
June 2013--scans/labs clear!!
Dec 2013--scans/labs clear11 OFFICIALLY 3 YRS CANCER FREE

46 children are diagnosed every day with cancer...

Who has my six? Anyone??

PeaNut 3,009
February 2000
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Loc: the left side of the right coast

Posted: 12/28/2012 11:53:44 AM
This is a link worth watching, for sure. I only wish that it weren't so long. And that I didn't need tissues to watch it. Oh, and that the whole issue were null and void.



The short time that they have on Earth should never be spent being poked and prodded and put through the things that they are. And, from a parent whose child has been on life support for an extended period, THE CAREGIVERS MAKE ALL THE DIFFERENCE.

YOU make more difference than you will ever know or give yourself credit for. Than any parent could ever tell you with any written or spoken word. But in the hugs, you will feel it. In the child's eyes - when you see that little glimmer that looks like, "really?" - that's it, too.

Love you.


My turn to hit the PEAnata!!!

PeaNut 121,208
December 2003
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Loc: SCV, CA

Posted: 12/28/2012 12:45:46 PM
Yes I worked at a peds hospital for 5 years and it was the most HUMBLING job I've had to date.

The children are absolute ANGELS on earth and their parents have GOT to be the most strongest, positive people I've ever met. To lose any life to cancer is heartbreaking...but for those that do survive? It's a true celebration


PeaNut 116,261
November 2003
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Posted: 12/28/2012 1:00:38 PM
Thanks for posting this!


May we be consumed with the Creator of all things rather than with things created.

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Holding a grudge is letting someone live rent-free in your head.

Canadian Girl 77

PeaNut 33,042
March 2002
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Loc: Canada

Posted: 12/28/2012 5:43:05 PM
My mom was a pediatric nurse in the Cancer ward in the 1970s. The children made a big impact on her and she still talks (and cries) about some of them.

The Banana Under the Couch Pea

PeaNut 295,941
February 2007
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Loc: Somewhere over the rainbow...

Posted: 12/28/2012 6:44:48 PM
I have a friend whose 18month old was recently diagnose with stage 4 neuroblastoma. It is gut wrenching,

TFS... I will do the same.

Seems a pity to miss such a good pudding.

PeaNut 247,139
February 2006
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Posted: 12/28/2012 7:12:20 PM

It breaks my heart what children go through while battling cancer.

How is your dd, Bran? I think about her often.


back to *pea*ality

PeaNut 471,633
June 2010
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Posted: 12/28/2012 8:42:39 PM
Thanks for sharing this. I will pass it on.

DS lost a high school friend in freshman year to cancer. The Foundation that his parents and sister founded are on the "One Voice" list. A small part of the legacy Andrew left for his classmates is a lifelong bond they share. They chose for the title of their yearbook "Band of Brothers" (all boys school and on graduation day, Andrew's parent received his diploma. Tennui Nec Dimmitam - " I have taken hold and I will not let go. ~ St. Francis deSales

Ancient Ancestor of Pea

PeaNut 289,166
December 2006
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Loc: Southern California

Posted: 12/28/2012 9:06:54 PM
My 12 yo DS is named after DH's childhood friend who lost his battle with cancer at 18.

I hope more progress can be made for those little ones in need of help.

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