If you've been touched by pediatric cancer...

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Posted 12/27/2012 by mirabelleswalker in NSBR Board
 

mirabelleswalker
My president has 6-pack abs.

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Posted: 12/27/2012 11:39:46 PM
The mom of a patient I worked with recently suggested that I watch a one-hour documentary on YouTube called "The Truth 365."

I watched it today. It is about the scarcity of funding for pediatric cancers.

The filmmakers created it with the hope of gaining momentum as the Kony video did last year. At the 39" point they ask the viewer to do several things--share the video with friends, to see if their congressional representative is supporting pediatric cancer legislation and write letters if appropriate, and to sign petitions requesting more support.

I want to do my part in each of the areas so I am sharing it here.

The Truth 365



look4angel
StuckOnPeas

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Posted: 12/28/2012 12:46:59 AM
Childhood cancer is horrible, it's bad enough for adults, but I can't stand that what it does to children.


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lucyg819
pearl-clutching nitpicker

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Posted: 12/28/2012 1:22:37 AM
My DD's best childhood friend lost her 8-month-old baby to a fast-moving brain cancer last year.

I will do what I can to help spread the word.


LUCYG
northern california

"The whole problem with the world is that fools and fanatics are always so certain of themselves, but wiser people so full of doubts."
--Bertrand Russell



mirabelleswalker
My president has 6-pack abs.

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Posted: 12/28/2012 1:26:27 AM
Oh, Lucy, that's so sad. I hate this disease so much, but losing children to it is the worst insult. We just lost a patient who was diagnosed at 10 months and battled for 3 years. It's been a horrible blow to our team.



**Bran**
AncestralPea

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Posted: 12/28/2012 1:27:34 AM
I've sent it to all my friends and posted it on my FB. I just now realized I should put it on my Dd's Caring Bridge.

Thank you for sharing here too.


Brandi

mirabelleswalker
My president has 6-pack abs.

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Posted: 12/28/2012 1:32:20 AM
Thanks, Bran! I don't have a personal connection to this film but I do think it's important to get some of the information out to raise awareness about pediatric cancers. As I'm sure you've learned through your own experience with your daughter, there haven't been any new drugs developed in decades and resources for research are really lacking.



luvmythree
StuckOnPeas

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Posted: 12/28/2012 11:41:56 AM
I will share thanks! There are cousins here in the area the 2 yr old was dx with a certain type if cancer can't remember which he's doing great.

The 14 yr old was dx'd with a rare form of ovarian cancer in Sept. and passed away on 12/12/12 @ 2:12 am. One of her family members did a fund raiser at the school she works and they made $1212.12. I'm going to share this link with her mom.


Kirsten mom to~
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Tonyababyrn
PeaAddict

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Posted: 12/28/2012 11:46:49 AM
Thanks for sharing and spreading awareness.


~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Tonya

On August 5th, 2010, my 11 yr old son was diagnosed with Mucoepidermoid Carcinoma of the Parotid Gland (a salivary gland cancer). He had his 2nd surgery on October 15th at MD Anderson in Houston where they removed the rest of the superficial lobe of the right parotid gland and 19 lymph nodes...all of which were negative. Currently he is cancer free with follow-up scans every 3 months.

Feb 2011--scans/labs clear!!
May 2011--scans/labs clear!!
August 2011--scans/labs clear!!
Nov 2011--scans/labs clear!! OFFICIALLY 1 YR CANCER FREE
March 2012--scans/labs clear!!
July 2012--scans/labs clear!!
Dec 2012--scans/labs clear!! OFFICIALLY 2 YRS CANCER FREE
June 2013--scans/labs clear!!
Dec 2013--scans/labs clear11 OFFICIALLY 3 YRS CANCER FREE


46 children are diagnosed every day with cancer...



ChildOfThe60s
Who has my six? Anyone??

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Posted: 12/28/2012 11:53:44 AM
This is a link worth watching, for sure. I only wish that it weren't so long. And that I didn't need tissues to watch it. Oh, and that the whole issue were null and void.

Children.

CHILDREN.

The short time that they have on Earth should never be spent being poked and prodded and put through the things that they are. And, from a parent whose child has been on life support for an extended period, THE CAREGIVERS MAKE ALL THE DIFFERENCE.

YOU make more difference than you will ever know or give yourself credit for. Than any parent could ever tell you with any written or spoken word. But in the hugs, you will feel it. In the child's eyes - when you see that little glimmer that looks like, "really?" - that's it, too.

Love you.


Blessings,
{Melissa}




2boysandwill
My turn to hit the PEAnata!!!

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Posted: 12/28/2012 12:45:46 PM
Yes I worked at a peds hospital for 5 years and it was the most HUMBLING job I've had to date.

The children are absolute ANGELS on earth and their parents have GOT to be the most strongest, positive people I've ever met. To lose any life to cancer is heartbreaking...but for those that do survive? It's a true celebration

purpledaisy
Calm

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Posted: 12/28/2012 1:00:38 PM
Thanks for posting this!


Becca

May we be consumed with the Creator of all things rather than with things created.

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Holding a grudge is letting someone live rent-free in your head.

Canadian Girl 77
StuckOnPeas

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Posted: 12/28/2012 5:43:05 PM
My mom was a pediatric nurse in the Cancer ward in the 1970s. The children made a big impact on her and she still talks (and cries) about some of them.



Woobster
The Banana Under the Couch Pea

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Posted: 12/28/2012 6:44:48 PM
I have a friend whose 18month old was recently diagnose with stage 4 neuroblastoma. It is gut wrenching,

TFS... I will do the same.

ScrapWench*
Seems a pity to miss such a good pudding.

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Posted: 12/28/2012 7:12:20 PM

It breaks my heart what children go through while battling cancer.

How is your dd, Bran? I think about her often.


----Theresa

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AncestralPea

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Posted: 12/28/2012 8:42:39 PM
Thanks for sharing this. I will pass it on.

DS lost a high school friend in freshman year to cancer. The Foundation that his parents and sister founded are on the "One Voice" list. A small part of the legacy Andrew left for his classmates is a lifelong bond they share. They chose for the title of their yearbook "Band of Brothers" (all boys school and on graduation day, Andrew's parent received his diploma. Tennui Nec Dimmitam - " I have taken hold and I will not let go. ~ St. Francis deSales

Luvnlifelady
Ancient Ancestor of Pea

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December 2006
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Posted: 12/28/2012 9:06:54 PM
My 12 yo DS is named after DH's childhood friend who lost his battle with cancer at 18.

I hope more progress can be made for those little ones in need of help.


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