A little quick help from Peas with abnormal periods due to hypothyroidism
Post ReplyPost New TopicPosted 11/23/2012 by PennyPaws in NSBR Board
 

princess_and_the_pea
StuckOnPeas

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Posted: 11/23/2012 5:22:12 PM
I don't think anyone can really answer that question for you. Everyone's body is different. I have hypothyroidism and PCOS and I have extremely weird cycles. Personally, when I do have a period it is usually heavy and I think in part, it is because I don't have one every month. I'd be prepared with plenty of painkillers & supplies. Hope getting started on your thyroid medication helps soon!

liannallama
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Posted: 11/23/2012 6:23:23 PM
I just found a facebook group calls Stop the Thyroid Madness that knows a LOT--maybe they'd know. There's also a website, book and a yahoo group too you can look up if you don't have FB. Good luck!


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MrsKLewis
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Posted: 11/23/2012 10:26:59 PM
I'm hypo and sometimes go months without a period. Mostly though ill only have a one day period. But it is never predictable. And I have read stop the thyroid madness. Don't know any doctor that takes it serious, including my family doc. And in the last 3 years I've been through 4 doctors. What helps me is my birth control. After starting thyroid meds I had to have my birth control adjusted. but at least now I know when I'll 'possibly' have a period. What's helped me the most has been thyroid forums. No book helps like chatting with someone that understands what you are going through! Hope your trip goes well!!


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JETsCAT
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Posted: 11/23/2012 10:27:16 PM
Im hypo and my cycle is like clockwork! 4-5 every 28 days!!! Being hypo is like a being a snowflake no two have the same symptoms!


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ribbonjunkie
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Posted: 11/23/2012 10:42:45 PM
I'm right there with you sister!!!!! It's a pain too!! Sometimes I spot for a week or two before it comes on. Then others times it light. Other times its extremely heavy!! My periods used to be so regular. I have noticed that having my meds regulated really doesn't help at all. I wished I knew more about how my thyroid really affects my body. I have been on meds for 3 yrs. I can tell immediately when my dose needs to be increased because I get extremely tired! Right now I'm up too 125. I'm curious what dosage you ladies are on as well. Also, is it normal to keep having to up the dose every single time I get my labs? Sorry to hijack your thread!!

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Posted: 11/23/2012 10:49:52 PM
Ya... I'd pack another suitcase for the pads if you are anything like me.

I ended up having to get the Mirena IUD to combat the hemorrhaging.


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ribbonjunkie
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Posted: 11/23/2012 11:17:56 PM
I'm so glad I'm not alone on the memory loss too! Most of the time go to do something and totally forget what I just got up to do! Sometimes I feel like I'm loosing my mind! Do you guys think that panic attacks are associated with hypothyroidism?

MrsKLewis
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Posted: 11/24/2012 12:06:54 AM
My 'foggy' brain is terrible!! Since the loss of my thyroid I've had to take a weekly B shot. My cholesterol has become high(and I rarely eat meat). My arthritis is terrible and I'm only 30! The list of things that have gone wrong with my body since my thyroid went kookoo is long and gets longer all the time. Can thyroid be blamed for panic attacks? Maybe not directly but indirectly? My B has dropped down so low I've taken 3 shots a week and when that happens I feel pretty crazy. Before finding out exactly what was wrong with me I went to two doctors swearing I was going through menopause! I demanded test! I had every symptom. The mood swings and terrible night sweats were the worst! Low and behold thyroid problems and menopause have the same symptoms. As advanced as medicine is today the thyroid seems to be still a mystery. My doc will say "we know it affects 'this' but there's no direct connection".
My meds are always up and down too. I read somewhere that the weather affects it... can't remember where I read that at. I've also tried several different kinds. Armour being my fav but most hated by all my doc because of its inconsistency. Right now I'm on synthroid 140 & cytomel 5. I was on synthroid 175 for a year and gained 70 pounds. I am not a fan of synthroid.


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ribbonjunkie
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Posted: 11/24/2012 7:40:02 AM
I recently had to start taking cholesterol meds too!! Ive had low vitamin levels in the past as well. I'm so glad I'm not alone!!! TFS you guys!!

a scrappin gal
StuckOnPeas

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Posted: 11/24/2012 9:01:59 AM
Be prepared to stop getting your period altogether.

When I was first diagnosed, it became very spotty, one day her, the next month for two days. Then it would skip months, sometimes two and eventually it stopped altogether.

I was tested for hormone levels and I still have estrogen, etc, but levels not high enough to produce a period. What I am saying is that technically I am in menopause since I don't bleed, but I show no signs yet of the other symptoms such as hit flashes, dryness, etc.

Good luck.

sunny_day
BucketHead

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Posted: 11/24/2012 9:47:11 AM
For those who have a brain fog:

I used to suffer with this and many other symptoms after having my thyroid removed at age 18.

When I was about 38 I found a doctor who helped me a lot. I had tried many different doctors, and they either prescribed Synthroid or Armour. Armour helped a lot, but then it was taken off the market, reformulated, and was never the same again for me.

Anyhow, I finally found a doctor who helped me a few years ago. He passed away this summer, so it's going to be a tough road again here I think.

Anyhow, he did a test that compared the ratio of T3 to RT3 (reverse T3). I had a very disproportionate amount of RT3. Every cell has a receptor site that accomodates both T3 and RT3. T3 is an active form and RT3 is inactive. So, basically, RT3 was taking up the place where T3 was supposed to go and not allowing it at the cellular level.

Synthroid and Armour and some others are T4. T4 is converted into T3 and RT3. It's supposed to be a certain balance. Mine was waaaaay off. I had mostly RT3 in my blood.

Also, my levels of corticosteroids (adrenal gland issue) were practically non-existent. I was a mess.

My doc put me on T3 and a small amount of Hydrocortisone. These two meds have changed my life. I no longer have brain fog and I have energy. Not as much as a normal person, but enough to change my life for the better. I actually went back to school to get my Bachelor's Degree and never would have considered something like that in the past.

It really changed my life.

If you look it up on the internet, you will see that it is called Wilson's Syndrome and there are a ton of people saying that it's not a real diagnosis, blah, blah, blah. Whatever, I've always been an alternative health kind of person anyway.

All I can say is that it worked wonders for me. Just the relief of brain fog was worth it. I was plagued with brain fog. I still have muscle pain and fibromyalgia and am tired a lot. But I was practically incapacitated at times before I got on the T3-only therapy. Now I am able to function.

T3-only therapy has helped me tremendously. But, it's not something you can get at your local Wagreens/CVS, it has to be compounded at a compounding pharmacy.

I encourage people to give it a look-see. If Synthroid and other meds based on T4 aren't helping, this just might help you, too.

PEArfect
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Posted: 11/24/2012 10:36:51 AM
I have hypothyroidism and had fibroids and endometriosis. I say had because I had a hysterectomy this week. No more fibroids or endometriosis. My periods were abnormally short and light. Usually women with fibroids and endometriosis have heavy periods. So, you'll just have to wait and see. Hopefully it's short and light. Have fun at the spa anyway!


Jen


MrsKLewis
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Posted: 11/24/2012 10:42:07 AM
"My doc put me on T3 and a small amount of Hydrocortisone. "

I have heard of this but to find a doctor to try it seems just about impossible.
I thought Armour was mostly t3?
Right now I'm driving 2 hours to see my current Endo(There's only one Endo practice in my city). I've been seeing him for 4 months, he's very honest and doesn't talk to me like I'm stupid when I ask to explain something. He told me I needed to lower my expectations because I was never going to feel like I did before losing my thyroid. No doctor before him ever told me that. I always had the hope if I found just the right dose I'd feel like before, like my normal energetic self. I mopped around for a week straight after hearing that. My husband couldn't understand why I was so upset. On occasion I hear of that rare person that takes thyroid meds and feels great. I don't know of anyone like that personally but I HEAR they are out there!


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sunny_day
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Posted: 11/25/2012 9:18:51 AM

I have heard of this but to find a doctor to try it seems just about impossible.
I thought Armour was mostly t3?


I'm not sure about Armour being mostly T3. I know I took it for a while and did fairly well. Then something happened and it was taken off the market. Rumor had it that the Synthroid people didn't like the competition. Anyhow, it came back on the market, but it was reformulated and a lot of people didn't do well on it after that.

It's hard to find a doctor to treat this well, unfortunately. The doctor that I mentioned started out as a regular, mainstream kind of guy. Then he started having thyroid problems. He ended up finding out a lot about the subject and changed his practice to focus on women's problems (thyroid problems are mostly women). He was a great guy but I knew that time was short. He was an older guy with no one that he was mentoring. I hate that all his knowledge was lost when he passed.

Anyhow, I hope you can find someone who can help you with the brain fog. If your doc actually listens to you, you should ask him to put you on T3 only and see how it goes at least. I can tell you where I get mine compounded.

Good luck
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