17 years ago today, I almost DIED

Two Peas is Closing
Click here to visit our final product sale. Click here to visit our FAQ page regarding the closing of Two Peas.

Posted 2/4/2013 by shelly49 in NSBR Board
 

shelly49
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Posted: 2/4/2013 9:50:28 AM
All these years later, February 4th is still a very hard day for me. On February 2, 1996, I had a laparoscopy and contracted Necrotizing Fasciitis or the flesh-eating bacteria disease. You can read my story here there IS a link at the bottom to VERY graphic images, but please don't click on it if you are very sensitive. I lived it, and they are hard for me to look at. My mom passed in June 2010, and NEVER saw them. She couldn't handle it. She caught a glimpse of my incision while helping me in the bathroom one day and almost passed out.

I still have PTSD, nightmares, and flashbacks. My scars have faded, but the numbness, excessive tightness, disfigurement, and general uncomfortable feelings are still very much there. I like to use this day to EDUCATE people on this horrible disease. I had NEVER heard of it myself until I got it.

Please take a minute to read my story and know the signs/symptoms. You could save a life--maybe your OWN.


Sheila




Please educate yourself and loved ones about NF or Necrotizing Fasciitis
or the 'flesh-eating bacteria' disease. You could save a life--possibly yours.

Read my story here

**WARNING my story contains a link to VERY graphic images.
Clicking on this first link will NOT bring up the images, so
you don't have to see them if you are very sensitive.



KikiPEA
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Posted: 2/4/2013 10:00:23 AM
God bless! I am so sorry you had to go through all of that. How awful! So glad you are still here.




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mikklynn
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Posted: 2/4/2013 10:03:08 AM
Sheila, your scars are badges of courage. You are a survivor!

I am sorry you went through this, and HAPPY to have you here!


Lynn



beachgirl55
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Posted: 2/4/2013 10:05:34 AM
OH MY GOD! I didn't look at the images, but the story was unbelievable. So glad you are still with us.

Ann

eebud
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Posted: 2/4/2013 10:18:20 AM
Wow! I am so glad that you are ok. Thank you for sharing your story. My DH has to have surgery in a few weeks so it is definitely something that is timely for me to read the symptoms.





Hans on left, Bud in middle, Gretchen on right

Chihuahuax3
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Posted: 2/4/2013 10:29:07 AM
(((HUGS))) Thank goodness your okay.

jcrsmom
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Posted: 2/4/2013 10:30:03 AM
Sheila, thank you for sharing your story. We actually met several years ago at a scrapbook crop or class in NH and sat across from each other. You shared your story with me back then and I often think of that when I hear about other cases.

Hope you and your son are doing well

Vickey

Annabella
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Posted: 2/4/2013 10:34:02 AM
I'm sorry this happened to you!




Luvnlifelady
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Posted: 2/4/2013 10:47:59 AM
Wow, I am so glad you made it through that. It must still be hard though with the recurring problems associated with it. I had a laparoscopy in 1996 as well and had never heard of this then. Thanks for sharing your story.



SueSume
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Posted: 2/4/2013 10:56:24 AM
Those are hard to look at. I can't imagine having to go through THAT.


Thank you for sharing the signs/symptoms.


*********Sue Who? *******


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Words are hard.-Hannah Kelly



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purpledaisy
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Posted: 2/4/2013 1:04:50 PM
Wow! I'm so glad you are alive. (((hugs)))


Becca

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Holding a grudge is letting someone live rent-free in your head.

shelly49
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Posted: 2/4/2013 3:03:56 PM
Thank you to those that read my story and those that dared to look at the pics lol. I now have an abdominal hysterectomy scar added to the collection. My hysterectomy in February 2011 was an was an extremely difficult recovery because if all the previous scarring and also having fibromyalgia. I spent 5 days in the hospital and honestly could have used at least one or two more. The pain from the second I woke up was SO bad (probably largely because if the Fibro) I asked if I had an infection again. I was terrified.

I was lucky to be able to give birth to my beautiful son in September 1999 despite all the surgical trauma just a few years before. Unfortunately, I ended up needing a c-section. My pregnancy was very painful even though I didn't get that big because of how my skin had to be pulled so far down after having my entire fasciia and surrounding fat and tissue removed to close the wound from NF so there wasn't much "give" anymore to stretch out.

Again, thanks for the responses. Every single one makes me happy that someone else is aware of this monster disease.


Sheila




Please educate yourself and loved ones about NF or Necrotizing Fasciitis
or the 'flesh-eating bacteria' disease. You could save a life--possibly yours.

Read my story here

**WARNING my story contains a link to VERY graphic images.
Clicking on this first link will NOT bring up the images, so
you don't have to see them if you are very sensitive.



shelly49
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Posted: 2/4/2013 3:05:32 PM
And Vickey, I vaguely remember your name. Was it at Amandindz in NH that we met?


Sheila




Please educate yourself and loved ones about NF or Necrotizing Fasciitis
or the 'flesh-eating bacteria' disease. You could save a life--possibly yours.

Read my story here

**WARNING my story contains a link to VERY graphic images.
Clicking on this first link will NOT bring up the images, so
you don't have to see them if you are very sensitive.



Mimima
Stay Gold, Ponyboy

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Posted: 2/4/2013 3:15:03 PM
I've always enjoyed your posts, I am glad you are here too.


~Mimi
"She is too fond of books, and it has turned her brain." - Louisa May Alcott

jcrsmom
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Posted: 2/4/2013 5:21:00 PM
Sheila, it was at Lighthouse In Salem. I remember you telling me some of your story. Don't laugh, but I remember you were working on a superman page...LOL! I forget what I was working on...LOL!

Vickey

ChristineC72
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Posted: 2/4/2013 5:41:12 PM
Oh my god, you poor thing! So glad you are here today & thank you for sharing your story.


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*Delphinium Twinkle*
I'm just a pea:)

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Posted: 2/4/2013 6:26:14 PM
I remember reading your blog about that many, many years ago here.
I've thought about you often and wondered how you're doing.
I had forgotten your peaname.

I'm glad you're doing we'll and I hope your PTSD gets better


Bethie
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shelly49
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Posted: 2/4/2013 6:36:37 PM
Oh Vickie, how I loved Lighthouse Scrapbooking! It's funny you remember my Superman layout lol. Those pics were when my son was just an infant--he just turned 13 in September! How time flies. I really miss Kim from Lighthouse. She is the one that inspired me to get into punch art. I wonder how she is doing?

It makes me feel good that so many of you remember my story. I can't believe I've been on here almost 12 years now! Thanks for all the kind words


Sheila




Please educate yourself and loved ones about NF or Necrotizing Fasciitis
or the 'flesh-eating bacteria' disease. You could save a life--possibly yours.

Read my story here

**WARNING my story contains a link to VERY graphic images.
Clicking on this first link will NOT bring up the images, so
you don't have to see them if you are very sensitive.



theshyone
I'm Alive!

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Posted: 2/4/2013 7:43:10 PM
My niece survived this back in 2004. Thank you for bringing awareness to it.


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PennyPaws
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Posted: 2/4/2013 8:42:03 PM
Read your story and saw the pictures, and I'm amazed at what you went through... So glad you made it through, and grateful you share and educate others...


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Really Red
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Posted: 2/4/2013 8:46:59 PM
I'm glad you are here to share your story!

I am sorry you still have PTSD from it. I don't doubt that at all.


Andrea

When one door of happiness closes, another opens; But often we look so long at the closed door that we do not see the one that has been opened for us.
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scrappintoee
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Posted: 2/4/2013 8:56:31 PM
I remember reading your story before---wow!! I'm sorry you still have nightmares, PTSD, etc! ((( hugs ))))

KateMarie
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Posted: 2/4/2013 9:14:18 PM
Holy Cripe! I'm so sorry you went through that, and I'm Sooo glad you are still with us today!


~Kate~








Swordscrapping
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Posted: 2/4/2013 9:53:31 PM
I'm glad you here to share your story! You do a great service by doing so!

I've read your story and looked a the images in the past...my husband had type II fascitis in his leg in 2002 (I've shared this story in the past).
It can start as something as small and simple as a bug bite or scratch. His rapidly grew..two doctors ignored his concerns. The third recognized it right away and warned us that if it was deep enough to reach the bone he could lose his leg. He had surgery and graft (that did not take first time), & months of recovery.

He luckily still has his (very scarred)leg. Like you, I had never heard of it until it happened.

You are awesome!

Dana

KristinL16
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Posted: 2/4/2013 10:02:59 PM
How scary! Glad you are here to tell the story.


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AngieandSnoopy
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Posted: 2/4/2013 10:19:55 PM
Sheila, I read your story quite some time ago, not sure how long. We've both been on 2 peas for a long time.

I've always remembered you were the one with the nightmare health story and amazed that you were able to overcome to the extent you have.


Angie ~ Snoopy, Amanda, Michel, Davy, Benji, & Onkita - my fur kids!
Red, Black & Tan, & Double Dapple mini Dachshund's! Is it Snoopy or Snoopea?
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BuckeyeSandy
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Posted: 2/4/2013 10:46:20 PM


But you are here now, and I thank you for the reminders.



Sandy
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REMEMBER this Veterans Day

To quote Wayne Gretzky, "You miss 100% of the shots you never take."

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birukitty
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Posted: 2/4/2013 10:58:30 PM
I am so sorry you had to go through this, but I am so happy that you are still here with us!

Thanks so much for sharing your story and photos. You helped educate another person today (me) about this disease, what the symptoms are, and what to watch out for. Obviously I'd heard about it's existence, but reading a first hand account and learning more about it in this manner will make it stick in my mind forever. I thank you for that.

You are an incredibly strong woman and using the anniversary of your experience to share your story is a generous thing to do indeed. I am so sorry that you are still dealing with PTSD and pray for your health in the future.

Debbie in MD.

Mary Kay Lady
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Posted: 2/5/2013 2:20:55 AM

Thank you for sharing your story with us. I'm amazed that you survived. You have a lot of courage to share your story with us.


*KelleeM*
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Posted: 2/5/2013 3:46:20 AM
I'm really sorry for what you've been through and am glad you survived.

Don't want to hijack your thread but...


I really miss Kim from Lighthouse. She is the one that inspired me to get into punch art. I wonder how she is doing?


I cropped at Lighthouse frequently and Kim and I became good friends. People always thought that we were sisters and she still calls me "Sis." She's doing really well and is very happy! She's on Facebook if you want to find her there you can Peamail me.





ScrapsontheRocks
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Posted: 2/5/2013 4:00:47 AM
You are an extremely brave lady, I salute you and wish you well.

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Posted: 2/5/2013 7:11:30 AM
Hugs!


Ann Marie

Sometimes seamstress sometimes cardmaker ALWAYS a Mom




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shelly49
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Posted: 2/5/2013 7:49:50 AM
I am overjoyed by the responses thank you all!

*KelleeM* I would love to connect with Kim! I was going to peamail you but I'm on my phone and I keep getting the stupid "want more two peas?" Pop up and I can't get rid of it! I'm Sheila Matie Toppi on FB. I don't know Kim's last name to look her up. Thanks so much! I've thought of her often over the years and always wanted to talk to her again.

theshyone--has your niece shared her story on the NNFF site or anywhere? I'd love to read it if she has. You can give her my email thetoppis@comcast.net if you think she would like to chat with someone that knows firsthand the hell she went through.

Dana--I hope your husband is doing well. It sure is a scary thing for everyone involved. There are lots of things I don't remember and things I only know because my family told me. There are probably a few things they have not told me as well, which is fine.

I don't think the nightmares or PTSD will EVER go away, but I've learned to live with that.


Sheila




Please educate yourself and loved ones about NF or Necrotizing Fasciitis
or the 'flesh-eating bacteria' disease. You could save a life--possibly yours.

Read my story here

**WARNING my story contains a link to VERY graphic images.
Clicking on this first link will NOT bring up the images, so
you don't have to see them if you are very sensitive.



PEArfect
Ancient Ancestor of Pea

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Posted: 2/5/2013 8:11:56 AM
Did they ever figure out how you contracted the NF? Wow! I've had four laproscopies and never even thought of this as a possibility. I'm sorry you had to go through this, but I'm glad you had a good outcome.


Jen


shelly49
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Posted: 2/5/2013 8:21:08 AM
The infectious disease specialist at the hospital said either a dirty instrument or if the doctor nicked or even touched my bowels during surgery that would cause it. All I know it I did NOT go into that hospital with it--but there was no way to prove or know for sure what caused it, so nothing I could do legally.


Sheila




Please educate yourself and loved ones about NF or Necrotizing Fasciitis
or the 'flesh-eating bacteria' disease. You could save a life--possibly yours.

Read my story here

**WARNING my story contains a link to VERY graphic images.
Clicking on this first link will NOT bring up the images, so
you don't have to see them if you are very sensitive.



Burning Feather
I conceived but I can't see you

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Posted: 2/5/2013 8:38:46 AM
I've read your story several times. It really is amazing how fast it all happened.

My best friend died in May of a fast traveling staph-type infection. As far as I know, it wasn't NF, but essentially she was healthy, had had no surgery, open wounds, or contact with anyone who was ill and one morning she woke with back pain and by the end of the night they were life flighting her to a hospital. Even though they put some sort of a pump into her back to pump out the infection every few minutes, it quickly destroyed all of her internal organs and she went into a coma within a few days and died shortly thereafter.



Carla




shelly49
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Posted: 2/5/2013 9:48:35 AM
So sorry about your friend Carla. This infection travels LIGHTNING fast. I didn't tell this part in my story and should have, but when I returned to the hospital on the 3rd, they took a Sharpie and circled the red, hot area on my abdomen. You could literally sit and watch it spread outside the line. It travels like an inch an hour, it is crazy. I was told if I had waited just a little longer and didn't have a few extra pounds on me for them to be able to cut out, I would NOT have survived. That was the only time I didn't mind having a few pounds to lose lol--and I DID lose about 30 pounds between what was cut out/off and not being able to eat much.

I was actually addicted to Morphine when I got home. I went from 20 days if pushing the Morphine button every 6 minutes pretty much around the clock and also having several other very strong drugs 3x a day for dressing changes to not being sent home with ANY morphine and only Dilaudid I think? Within a few hours of getting home I was shivering uncontrollably, sweating, and couldn't keep any food down. That's when it hit us that my body was craving the Morphine. That was NOT fun.

It was all do overwhelming. I remember my then dh and MIL, and my parents and I sitting in the living room when someone showed up with 4 huge shopping bags of medical supplies for dressing changes and IV meds (I had a PICC line in my arm) that my husband or the visiting nurse had to do 3x a day. I was SO terrified of the infection coming back. The nurse had to put the old bandages and dressing material in a plastic grocery bag and pour bleach in it and put it out in the garbage outside immediately. It was so scary.

One of the worst parts of every day was having to make the trip down then back up 13 stairs to my bedroom to open the door for the visiting nurse in the morning because my dh left at 5:00 a.m. for work so I had to open the door.

And I'm sorry for the long posts, but it is healing to open up about more details I didn't put into my original story. Thanks to everyone that is reading all of this!


Sheila




Please educate yourself and loved ones about NF or Necrotizing Fasciitis
or the 'flesh-eating bacteria' disease. You could save a life--possibly yours.

Read my story here

**WARNING my story contains a link to VERY graphic images.
Clicking on this first link will NOT bring up the images, so
you don't have to see them if you are very sensitive.



Georgiapea
Mom to the Wild Things.

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Posted: 2/5/2013 11:19:29 AM
Thank you for posting about your horrible ordeal. I'm so sorry you experienced such a terrible trauma. I've printed the symptoms from the link you so kindly supplied.

Ariana_T
StuckOnPeas

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Posted: 2/5/2013 12:02:54 PM
Sheila, your story made me cry. I am so so sorry you had to go through that experience. I'm heartbroken that you still live with the emotional and physical effects but I am also glad you are alive today!

It's upsetting that the nurses and doctors didn't know/do enough right away to help you fight the disease, hopefully someone somewhere is helped by you sharing your experience online.


~~~~~~~~~~~~~~~~~~~~~~~~~~Ariana~~~~~~~~~~~~~~~~~~~~~~~~~~
Wife to Allan, mommy to Brooklyn, Sierra, Payson, Ember, and Everett!
My Blog (or click image below)




nicolequinn
Sick of Snow

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Posted: 2/5/2013 1:05:32 PM
OMG. That is just awful. I am so sorry you endured all that... and now to continue to live with PTSD and numbness. I'm so sorry... but so glad you survived.


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