Any peas with celiac disease?

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Posted 6/17/2013 by HoneyBee13 in NSBR Board
 

HoneyBee13
StuckOnPeas

PeaNut 563,248
August 2012
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Posted: 6/17/2013 6:03:58 PM

My question(s) is what tests did they do? Did you test positive with that test? And if you didn't did you get more testing done?
I have a DR appointment on Thurs and plan to get labs done I just want to make sure that I get the right tests.
TIA

TinaFB
the lunatics have taken over the asylum

PeaNut 25,135
November 2001
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Posted: 6/17/2013 6:18:02 PM
My husband has it. He tested positive for the genetic marker in a blood test, then had a biopsy to confirm. The biopsy was done during an upper GI endoscopy.

Eta. I'm gluten intolerant too, but not technically celiac. I tested negative on the blood tests, but my biopsy showed inflammation consistent with gluten intolerance. I removed gluten from my diet and felt like a new woman. I didn't realize how bad I felt until I was better, kwim?


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HoneyBee13
StuckOnPeas

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August 2012
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Posted: 6/17/2013 7:13:37 PM
Thank you for responding. If I test negative I will get the biopsy done.

HoneyBee13
StuckOnPeas

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Posted: 6/18/2013 8:33:37 AM
BTT

WiiPii
Dirty little freaks!

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Posted: 6/18/2013 10:23:51 AM
The blood test they run is TTG if it comes back elevated then an endoscopy with biopsy is used. A biopsy is the only way to officially diagnose celiac although the TTG is a very, very good indicator. Both my kids have celiac so I've been down this road a few times. Make sure you keep eating gluten as you go through the testing. It needs to be in your system for the testing to be accurate.


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Monklady123
Ancient Ancestor of Pea

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Posted: 6/18/2013 10:27:02 AM
I have it. I had a positive blood test. But by the time I got those results back I'd already given up gluten. I felt SO MUCH better practically over night that there was no way I was going back to eating gluten for the sake of that biopsy. My doctor said the blood test and my response to a gluten-free diet was enough for her. And anyway I didn't care whether or not I had an "official" result from a biopsy. I know that when I accidentally get gluten I feel horrible. When I'm gluten free I'm great. So I feel no need to have that biopsy.



scrappin4swtpeas
PeaAddict

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August 2004
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Posted: 6/18/2013 11:22:51 AM
I had the blood test & then the endoscopy to confirm. My positive results & biopsy were only a few days apart, so I kept eating gluten.

I think there are certain situations that you need a doctors confirmed diagnosis of celiacs. For example, you can write off a certain portion of your gluten free food as a medical condition. So I wouldn't go gluten free until everything is confirmed.



HoneyBee13
StuckOnPeas

PeaNut 563,248
August 2012
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Posted: 6/18/2013 11:26:11 AM
Thank you so much for the information, it is greatly appreciated. I may not have celiac disease but it would be nice to know.

Monklady123
Ancient Ancestor of Pea

PeaNut 475,028
July 2010
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Loc: Northern VA

Posted: 6/18/2013 11:47:56 AM

I think there are certain situations that you need a doctors confirmed diagnosis of celiacs. For example, you can write off a certain portion of your gluten free food as a medical condition. So I wouldn't go gluten free until everything is confirmed.

The problem with this is that most food already is gluten free. So you'd have to be eating an awful lot of prepackaged gf convenience foods for it to be worthwhile writing off on your taxes. For me that wouldn't be worth the endoscopy since you have to have anesthesia for that.


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