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identicaltriplets
To God be the Glory!
PeaNut 221,552
September 2005
Posts: 6,222
Layouts: 435
Loc: Glad to be back in the Carolinas!
 |  Posted: 1/30/2013 5:57:38 AM
My daughter was diagnosed with Chiari Malformation on Monday. I have wondered how to document all of this as it's going to be a long road. I also want her and the family to see the notes of encouragement that we receive. So, this morning, I pulled out a Simple Stories album and got started! I think it will be the perfect solution. You can see my complete details here:
Documenting the Difficult
I pray it helps some of you to document those difficult journeys too!!! |
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HoneyBee13
PeaAddict
PeaNut 563,248
August 2012
Posts: 1,139
Layouts: 0
Loc: Florida
| Posted: 1/30/2013 7:13:04 AM
I am so sorry about what you and your family are going through!
I will keep your family in my thoughts and prayers.
God never gives us more than we can handle!
xoxo Melissa |
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Shih Tzu Mommy
Million dollar camera, 10 dollar lock!
PeaNut 224,352
September 2005
Posts: 23,525
Layouts: 0
Loc: Right here
| Posted: 1/30/2013 7:15:20 AM
I have documented difficult and trying times and pray that you find it to be as helpful and cathartic as I did. |
Dog people are a special breed! | |
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identicaltriplets
To God be the Glory!
PeaNut 221,552
September 2005
Posts: 6,222
Layouts: 435
Loc: Glad to be back in the Carolinas!
| Posted: 1/30/2013 7:23:42 AM
Thanks girls! I think the best part is printing the prayers and encouragement people have sent. I have read them several times already, and I can't imagine how much more they will continue to encourage us on this road. |
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transprntbutterfly
BucketHead
PeaNut 478,947
August 2010
Posts: 856
Layouts: 2
Loc: Ohio
 | Posted: 1/30/2013 7:34:05 AM
Sending prayers and positive thoughts for your daughter and your family. | |
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arelys1228
PeaFixture
PeaNut 422,247
May 2009
Posts: 3,225
Layouts: 160
Loc: Queens NYC
 | Posted: 1/30/2013 8:21:16 AM
lots of prayers and hugs to you --
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| Love Peace Health and Happiness to you...Rosey | |
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acreativechristian
PeaNut
PeaNut 570,629
October 2012
Posts: 103
Layouts: 0
Loc: near Chattanooga TN
| Posted: 1/30/2013 9:08:06 AM
Truly sorry to read this. Your daughter and entire familuy are in my prayers. |
| be Creative and be Blessed! | |
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Linda_B
What can I post about?
PeaNut 43,802
July 2002
Posts: 996
Layouts: 6
 | Posted: 1/30/2013 9:29:11 AM
Blessings to you and your family as you walk this path!
I really like your idea about documenting your questions, thoughts, prayers & scriptures.
Please update for us! | |
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seasonscraps
PeaAddict
PeaNut 113,955
October 2003
Posts: 1,444
Layouts: 17
 | Posted: 1/30/2013 9:40:00 AM
I am very sorry for what you, your daughter and your family are going through. | |
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pcrfn
Jeepers PEApers
PeaNut 36,328
April 2002
Posts: 2,978
Layouts: 7
Loc: southern IN
 | Posted: 1/30/2013 10:10:14 AM
I am so sorry to hear that your daughter and your family have this to struggle with this. Praying that her surgery is a success and that she will be able to continue with her school plans. Many prayers for you all. Maria | |
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JLBOhio
BucketHead
PeaNut 66,991
February 2003
Posts: 776
Layouts: 18
Loc: Ohio
| Posted: 1/30/2013 10:10:43 AM
First, so sorry to hear that your family is going through this. Positive thoughts and prayers headed to all of you. Second, Thank you for sharing your story and process to try to help others going through tough times! |
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smcl
PeaAddict
PeaNut 526,836
November 2011
Posts: 1,074
Layouts: 0
Loc: Beautiful HB, Southern CA
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EllenPea
Pea with a Pen
PeaNut 70,644
February 2003
Posts: 19,331
Layouts: 783
Loc: Southern California
| Posted: 1/30/2013 10:58:02 AM
Praying for strength and healing for you and your daughter!
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Memoreez2
PeaAddict
PeaNut 486,668
October 2010
Posts: 1,551
Layouts: 0
Loc: San Antonio, TX
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3kidmama
AncestralPea
PeaNut 268,201
July 2006
Posts: 4,918
Layouts: 8
Loc: Northwoods
 | Posted: 1/30/2013 12:55:17 PM
(((((Patter)))))
I'm praying right now that your entire family will truly KNOW that the Great Physician has all of this under His control and will be guiding the neurology teams as the care for your daughter and family.
Our family has also had a couple of times were it felt like our world had flipped upside-down due to serious medical issues. I'll continue to pray that each one of you feel His Loving, UNFAILING arms carrying you right now! | |
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mrsk2004
Hap-Pea To Be Here
PeaNut 361,190
February 2008
Posts: 5,892
Layouts: 0
Loc: Upstate New York
 | Posted: 1/30/2013 1:45:04 PM
Patter, I think it is wonderful to make a memory book of this for her. Even though it may be a long, tough road, she will feel comfort knowing that people love her and are praying for her. Being able to look at it and read may be just what she needs some days.
I will pray for her and your family. Reading this is so amazing to me, a good friend at work has a niece who has Chiari and it is so uncommon. In fact, they just had a benefit for her to help her with medical bills and I was so pleased to be able to help her. I pray that her surgery will be soon and she'll heal fast enough to be able to go to college with her sister this fall. I'll also pray for peace for you all. |
~Sarah
People may not remember what you said or did, but they will always remember how you made them feel.
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Gem Girl
PeaAddict
PeaNut 460,363
March 2010
Posts: 1,388
Layouts: 7
Loc: Lost in thought
 | Posted: 1/30/2013 4:00:38 PM
Patter, this is 1 of the reasons you're so dear to us here in the pod--even as you face a challenge, you're finding ways to use it to the good for everyone.
Blessings & hugs to you & yours.  |
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I've been a dilettante, but I'm thinking of dabbling in something else.
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identicaltriplets
To God be the Glory!
PeaNut 221,552
September 2005
Posts: 6,222
Layouts: 435
Loc: Glad to be back in the Carolinas!
| Posted: 1/30/2013 5:52:41 PM
Agh, thank you all SO much. I really wanted to help someone else that may be walking a difficult road. I think I remember someone posting and asking if they scrap the hard stuff. Well, just today the prayers and comments I have printed have helped us. They don't have to be scrapped or fancy. I think I have read each journal card I have printed 3-4x already. You would think I would have them memorized but I don't. LOL! My brain is too "foggy" for that. So, I thank you all for praying for us but I also pray someone else can use this to help anyone (family or friend) that may just need this very thing. Blessings to each of you! |
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Sophikins
PeaAddict
PeaNut 62,725
January 2003
Posts: 1,506
Layouts: 27
Loc: Pacific NW
| Posted: 1/30/2013 11:45:05 PM
Patter, I have followed your blog for awhile- it is so inspiring in so many ways. Although I don't have triplets, I have 3 dd's within a 4 year span, so they are pretty close, and they are near in age to your girls. I have also enjoyed your posts about art journaling since I took it up at about the same time and took some of the same on-line classes.
In 2009, as I was doing P365, my then 15 yr old dd had a severe traumatic brain injury from a skiing accident. She was in a coma for close to a week, so I spent a lot of time in the Neuro ICU. She was in the hospital nearly a month. At the time I could not do anything but pray. It was so sudden and so uncertain that I could not let myself think or reflect at all. For me it was too difficult- I just prayed. Those days are just big blanks in my P365/PL album. But I saved all the letters and cards, and at about 3 weeks after, as she was recovering, I was able to start taking some pictures- of her and those who were important in her recovery, and of her hospital room with all the cards, and photos of all the flowers and other gifts. At later visits I took photos of her doctors and therapists and the hospital. Someone even gave me a diecut of a helicopter (she was lifeflighted off the mountain).
I am sure you and your family will get through this- prayer was an incredible comfort.
My dd's accident happened in mid-April, and although it was a lot of hard work over most of the summer, she was able to get back to school in the fall at her grade level. She is a freshman in college now. It is amazing what can be accomplished with support, effort, love, encouragement and prayer. |
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leftturnonly
Will trade mosquitoes for cookies.
PeaNut 416,788
March 2009
Posts: 19,575
Layouts: 0
Loc: Living in Kim's Perfect World, again.
| Posted: 1/31/2013 1:53:07 AM
Agh, thank you all SO much. I really wanted to help someone else that may be walking a difficult road. I think I remember someone posting and asking if they scrap the hard stuff.
Consider your mission accomplished.
Best of luck to your daughter on this difficult journey. May you continue to feel God's hand upon your lives and never forget that you are loved.
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If PC is the way to get to Heaven, I'm going straight to Hell.
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