Questions for parents of kids with food allergies (or themselves)

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Posted 4/4/2013 by liasmommy2000 in NSBR Board
 

freecharlie
What happens in NSBR, stays in NSBR

PeaNut 109,127
September 2003
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Posted: 4/4/2013 4:20:08 PM
As a parent, I would certainly err on the side of caution in this case. If the allergy doctor told me to cut them out I would.

DS gets allergy shots weekly for his allergies (not food). Yesterday he reacted after getting the shot. They took him back, stuck him with an epipen and gave him three breathing treatments. He recovered fairly quickly (about 30-50 minutes). Had he not been in the office and reacted to something, the outcome could have been different.

I wouldn't play with my child's life.


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BEF2008
AncestralPea

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January 2005
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Posted: 4/5/2013 9:11:08 AM
Oral challenges scare the bejeebers out of me. I'd rather have the skin prick test, myself. In my mind it just seems like a safer way to do it, but depending on your histamine level, it may be just as risky. I don't really know for sure, but I'd rather err on the side of caution. Ditto for the whole situation. I think your sister is correct that cross-contamination is often pretty likely, so why risk it? My personal philosophy is better safe than sorry, especially when it comes to unpredictable allergies and kids that are very allergic to a lot of other stuff already.

mom2kbs
PeaAddict

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December 2005
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Posted: 4/5/2013 10:08:48 AM
My daughter has anaph. reactions to bananas, and all melons however her skin and blood tests show she is not allergic. She has an oral allergy to them. She can eat them cooked as it changes the protein content therefore changing the allergy. She still avoids them as it scares her.

She has also shown by prick and blood tests to be allergic to mango, avacado, kiwi and cucumber. She has never had a reaction but she still avoids them as her tongue and lips get tingly and hives.

My allergist suggested she avoid anything that makes her feel off even if the prick test did not show allergy. Sometimes the oral ones are worse.

KittenOnTheKeys
PeaFixture

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February 2011
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Posted: 4/5/2013 2:14:27 PM
I'd let the parent do what the allergist says.

Not all symptoms are obvious. Some are more subtle resembling ADD or muscle cramps. Some may be a slight skin flush. It could be the cause of the tummy issues or insomnia. A lot of these are just not visible unless you deal with them every day.

Sometimes skin tests are enough, sometimes they are not. With a few items, the Dr was ok with use trying foods at home. With some he is not ok with us trying at home. Sometimes you have to do additional blood tests.

We are gearing up for an oral challenge right now. We had to schedule on a day when the dr and emergency nurses are on duty. He will be hooked up to an IV (for emergency meds). He is not allowed anything other than water after midnight on test day. They are going to be monitoring everything. He will be there all day.

It is a lot of work keeping up with a kid with allergies.



scrappychick13
PeaFixture

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March 2005
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Posted: 4/5/2013 3:02:41 PM
When you have a child with multiple food allergies, you are living in fear every day. Allergies have been know to progress over time. One day he can eat a steak, and the next time have a reaction. Why risk a child's life? Having seen a child almost die from one bite of food, I can tell you that you don't get to have an opinion.

kellybelly77
PeaFixture

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October 2006
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Posted: 4/5/2013 3:11:21 PM
I read the book The Unhealthy Truth about the food supply system in the US and she talked a great deal about food allergies as her child suffers from some. She said that food allergies may not present in the normal reaction but can come on slowly (as if they are building up) and that it may be constant earaches or stuffy noses and not typical reactions. She did a great job linking constant earaches and the putting of tubes in ears with dairy allergies. Your sister should read the book! Also, if the allergist told me to cut those things out of my child's diet I would.

I think she should work with him on eating fresh fruits, veggies, beans, etc. You don't need meat to survive!


Kelly
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